"Pulitzer Prize-winning reporter Amy Dockser Marcus shows what happened when a group of parents joined forces with doctors and researchers to try to save children's lives. Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors...

"No one said motherhood would be easy. For Adiba Nelson, the journey to parenthood started with a big bang and continues with a breakdown (or two) and several "why?" questions for God. Witty and bold, Afro-Latina Adiba grew up in survival mode. Her sometimes complicated relationship with her strong-willed, vibrant, religious mother marked her views of mothering and love. When a chance encounter with a tall-ish, brown-skinned brotha at Ruby Tuesday's...

"This book explains how to best conduct IEP and Section 504 team meetings, ensure parent participation, and build trust, while maintaining a legal, efficient, and effective process . . . Includes: purposes and procedures of IEP and 504 meetings; what constitutes a team's job, and what to avoid; best practices, including language and tips to keep meetings on track; and do's and don'ts for productive and legal meetings"--OCLC.

When Peter Gwasdauskis, a child with Down syndrome, was mainstreamed into a public school, he had a lot to learn about dealing with differencesand so did his classmates. Filmed over the course of the third-grade school year, this 1992 Academy Award-winning documentary vividly captures Peters achievements and frustrations as he makes a place for himself among his peers. The program features interviews with Peters parents, teachers, fellow students,...

This guide identifies strategies and action steps to address Health Care Transition. The goal is for youth to move from school to work, from Pediatric to adult health care and from living at home to independent living. The challenge is to identify and access adult services, to develop age/ability-appropriate support systems, and maximize independence - insuring that elements of a Medical Home Approach are in place

What happens when love runs out of time? For 92-year-old Mimi, who has spent much of her life caring for 64-year-old Dona, her daughter with an intellectual disability, it means facing the inevitable -- the likelihood that she will not outlive her daughter and the need to find her a new home. Filmmaker Sophie Sartain, Mimi and Dona's granddaughter and niece, respectively, captures the quirky and deeply connected mother-daughter duo at their most poignant...